Aches, Pains, & Naps. Oh my!

Ok, I need to fuss/whine/complain/holler/cry-on-your-shoulder/vent. Pain hurts~ As you may know, I suffer/battle/hate having Rheumatoid Arthritis & Fibromyalgia. I was diagnosed with RA during my 3rd pregnancy...so in 1988. It did not get bad for me until after my six strokes in 2005. Is it just me or is this beginning to read like the blog of an 98 year old woman instead of a 48 year old? I digress. To look at me you would think I was lying if I told you I had six strokes in seven days. God is good...I have no residual damage that one associates with stroke(s). I walk fine, talk fine, and for the most part all is well with my soul.

Since the strokes, however, stuff has begun to deteriorate...stuff meaning my body. Fibromyalgia reared its ugly head about two years ago and I gotta tell you...this sucks! There are some wonderful medications that do help. I take Plaquenil for the arthritis and Cymbalta for the fibro. They are both miracle drugs as far as I am concerned.

I can, and often do, go for weeks without pain. I LOVE those times. For the last two weeks I have been in constant pain, differently abled, and finally mad. I just went to sneak in a nap because hurting wears me out. I could not sleep due to pain. UGH~

I just realized that I am heading into a fibro fog...my mind is not clear. I hate the fogs worse than the pain.

Pray for me, please. I am gonna go blast this song(on repeat) and sing as loud as I can along with Chris Tomlin. Therein lies great comfort.

Strength will rise as we wait upon the Lord
We will wait upon the Lord
We will wait upon the Lord

Strength will rise as we wait upon the Lord
We will wait upon the Lord
We will wait upon the Lord

Our God, You reign forever
Our hope, our Strong Deliverer

You are the everlasting God
The everlasting God
You do not faint
You won't grow weary
You're the defender of the weak
You comfort those in need
You lift us up on wings like eagles
Strength will rise as we wait upon the Lord
We will wait upon the Lord
We will wait upon the Lord

Strength will rise as we wait upon the Lord
We will wait upon the Lord
We will wait upon the Lord

Our God, You reign forever
Our hope, our Strong Deliverer

You are the everlasting God
The everlasting God
You do not faint
You won't grow weary
You're the defender of the weak
You comfort those in need
You lift us up on wings like eagles

Our God, You reign forever
Our hope, our Strong Deliverer

You are the everlasting God
The everlasting God
You do not faint
You won't grow weary
You're the defender of the weak
You comfort those in need
You lift us up on wings like eagles

SASSY meme Volume 1

SASSY HAS MOVED!! CLICK THE GRAPHIC ABOVE TO CHECK OUT HER NEW DIGS~
Okay, like I needed another meme to do. Oh wait, I can't complain. I made this one.

I would love to tell you that I am organized enough to list sites by theme each week, but I make no promises. This weeks theme is 'Sites I Frequent'.

1. Sandy is my personal assistant and I LOVE her.
2. Craftster is a great forum for crafters of any kind.
3. Fibromyalgia Sufferers Resourses here.
4. Bonnie has awesome quilt patterns and tips at Quiltville.
5. Patchworks is a fun free online game.

Turning over a new leaf

Two years ago, I suffered six full-blown strokes in a matter of seven days. God is good and I have no visible residual damage from the strokes. The mental and emotional parts of me are scarred.

Although I had battled Rheumatoid Arthritis before the strokes, it has escalated since then. I also now battle Fibromyalgia. Due to these two facts, I am in severe pain most of the time and this has affected me both mentally and emotionally. In retrospect, it may have been a good idea to have sought counseling following the strokes.

I did, however, seek medical help. Since the strokes I must take the following meds: Aggrenox(to thin my blood), Altace(to regulate my blood pressure), and Vytorin(to reduce and conrol my cholesterol level). Those meds are considered life-sustaining. I also take the following meds: Cymbalta(to help with depression and fibromyalgia), and Plaquenill(to help with arthritis pain and to help slow the progression of damage to my joints). I also take Vicodin(to kill the pain)on the days when I absolutely have to.

I have good days, so-so days, and bad days. I live for the good days! Even though I am not an overly active person, I do enjoy the things I do...and when I want to do something, I want to do it! Pain often keeps me from being able to do even the simple things. Some days I can not stand long enough to wash the dishes or walk downstairs and carry a basket of laundry from the basement to the first floor, let alone cut fabric or piece a quilt top. This pisses me off!

I am only 47 years old...I am NOT 87, 97, or 107. Aging does not now, nor has it ever, frightened me. Not being able to take care of myself due to disabilities, does however, terrifies me. If at 47 I have days when I need assistance to partake in normal activity, what does the future hold for me in terms of independence?

Aside from the physical aspects of my life comes the normal mental and emotional things. I am working on acceptance of these changes in my abilities and yet need desperatley balance acceptance with NOT sacrificing my need to continue to strive to hold onto my independence, or as much of it as is possible, for as long as I can.

Then there are the fibro-fog days. Just like when I was having those six (initially undetected) strokes, my mind fogs up making it impossible to have any clear thoughts what-so-ever. These days are sheer hell and cause me to wonder which is worse...the physical manifestations of all of this or the mental and emotional ones.

Today is the third good day I have had in a row. This after two solid weeks of sheer hell enduring a dual flare-up of my conditions.

As I am learning more about the symptons of both Fibro and RA, I am attempting to educate those around me. I know it is difficult for my children-who are all young and brimming with life-to see me not being able to do normal things for myself some days. It is also, for the most part, difficult for them to understand what I am going through. The more we talk about it and the more they learn, the better it will be for all of us. Knowledge is power!

This blog entry is a major step for me. In the process of accepting life as it is for me, I have decided that blogging about what is going on with me will accomplish two things. First, it will help me vent. Secondly, it will potentially help others who suffer as I do.

I generally shun the thought of blogging on my bad days. No one loves a complainer. I do realize now that even though that may be true, I can no longer keep all of this crap bottled up inside of me.